Discussion on AFM
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Prior to Cambria getting ill she was a normal 2.5 year old toddler ~ running all around, jumping, singing, dancing, riding her bike, swimming and just playing all day long! She has always had a beautiful light around her like a little Angel sent to us straight from Heaven ~ Thank you GOD
Back on September 23rd 2016 Our baby Cambria Annabella Tate AKA CamiCAT was stricken with Acute Flaccid Myelitis (AFM). It is a rare and extremely dangerous virus that attacks the nervous system. We were admitted at Balboa Naval Medical Hospital in San Diego, CA at 7:45pm and in less than 15 hours the virus had taken over – she was put in a medically induced coma, she had “Impending Respiratory Failure” and put on a ventilator! Scariest moments of my life!
As I look back in time here is what I remember.. Hours before she was taken in to the operating room to preform a MRI Cami looked up at me as I was holding her in my arms and she said ~ I Love You, I Love You, I Love You!! It was like tunnel vision as our eyes were locked on each other – I was crying and I was so scared – everything was spiralling out of control – I told her the same and tried comforting her the best I knew how! The fear we all had that day was undeniable. The picture is from that moment.. I took that picture and posted it on Facebook requesting prayer. What nobody knew, but a few people like close friends and family members was that Cambria was dying! The MRI proved in fact she had Acute Flaccid Paralysis/Myelitis. She had Grey Matter in her cerebellum, top and bottom of her spinal cord. I will never forget as we all gathered in to her Doctors small office in the PICU as he went over in detail the pictures of her MRI. We all stood there in shock! How could this be… what happened… how did we get here… I remember like it was yesterday pulling Dr. Zabroki aside after we had discussed in detail what her diagnosis was, and it was grim, we were told a lot at the time, but all I heard was “there is no cure” so with that being said after the discussion we all stood together as a family including her Doctor and prayed! I pulled Dr Zabroki aside and made him promise to do what ever he had to do to save her, to always be upfront and honest with us and that’s precisely what he did – I think I was literally begging him as I held him in my arms with my hands gripping into his clothing… I don’t think he slept after that for at least 48 hours. He Compiled the most up to date data and scientific research including a new form of treatment with the use of Prozac as an antiviral only being done on mice models at the time by a scientist in Colorado.
Acute flaccid myelitis (AFM) is a rare but serious condition that affects the nervous system, specifically the spinal cord, which can cause the muscles and reflexes in the body not to work normally. This type of condition is not new. Anyone can get AFM or neurologic conditions like it, and there are different possible causes, such as viruses, toxins, and genetic disorders.
Most patients will have sudden onset of limb weakness and loss of muscle tone and reflexes. Some patients, in addition to the limb weakness, will experience:
• facial droop/weakness,
• difficulty moving the eyes,
• drooping eyelids, or
• difficulty with swallowing or slurred speech.
Numbness or tingling is rare in patients with AFM, though some patients have pain in their arms or legs. Some patients with AFM may be unable to pass urine. Cambria had the most severe symptom of AFM, which, is respiratory failure that can happen when the muscles involved with breathing become weak. This can require urgent ventilator support (breathing machines). If you or your child develops any of these symptoms, you should seek medical care right away.
Please visit the CDC for the most up to date information pertaining to AFM ~ See the link posted below.